By M.D., Lynn M. Taussig, M.D. James C. Cunningham
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Additional resources for An Introduction to Cystic Fibrosis for Patients and Families
Oral antibiotics are used to treat mild pulmonary exacerbations. They work against most bacteria, but do not always work against Pseudomonas. Your CF doctor can tell you if oral antibiotics are needed and which are best for you or your child. Intravenous (IV) antibiotics are solutions with antibiotics that are put into the blood through an IV catheter. If oral antibiotics do not work, IV antibiotics may be needed. This often means a hospital stay, but many CF care centers prescribe IV antibiotics, to be given at home to some of their patients.
Give them their own salt shaker. This will help avoid problems. When sweating more (in hot weather, during exercise or with a fever), someone with CF should drink more and eat more salty food. If symptoms of salt loss are present, the doctor may give extra salt. People with CF may need to avoid some times of heavy sweating, but should not limit activity. No one should have too much sun or heat. Use common sense. Make sure your child eats more salty foods and drinks more when sweating. Remember Everyone with CF loses more salt in their sweat than normal.
They need extra treatment. Call your CF care center if you think you or your child are having a pulmonary exacerbation. 41 How CF Affects the Body Signs of a pulmonary exacerbation: More coughing and/or wheezing Chest congestion More mucus (sputum, phlegm) Change in sputum color (to dark yellow or green) Sometimes blood-streaked mucus Tiredness, less energy Less able to exercise Lower lung function on pulmonary function tests (PFTs or breathing tests) Weight loss and/or poor appetite Sometimes fever Tests Your CF care team learns a lot by hearing your report of symptoms and how you or your child is feeling and acting.
An Introduction to Cystic Fibrosis for Patients and Families by M.D., Lynn M. Taussig, M.D. James C. Cunningham